Sometimes knowing is worse than not knowing 

Sometimes knowing is worse than not knowing 

A while ago I posted somewhere about neuropathy , something I have been told I’ve been suffering from for the last 5 years 

Well that’s not the full story 

Finally got my MRI results back – brain all clear thankfully no sign of Parkinson’s which I was expecting – thinking moving onto the spine it would be a case of trapped nerve / nerve root damage 


They have discovered I have atypical haemangiomas between discs T2 and T3 (shoulder area ) and L2 (lower spine ) the latter explains all the pain I get 

Basically 90% of these are benign at the moment I don’t know if mine are cancerous or benign , to explain them better they are the same as the raised strawberry birthmarks people get on their faces but these are growing between the discs 

I now have to wait till 24 October for a further meeting with my consultant – either way they have to be treated as they are pinching the nerves

Treatment options are 

  1. Full removal 
  2. Surgery to stop the blood supply 
  3. Radiation therapy 

So many people are saying to go for the radiation therapy it’s not pleasant but sure as hell beats spinal surgery 

As my Facebook bio now says “I always knew I was special I have gummy bears growing in my back – my MRI says so” 

Why gummy bears ?? Because I couldn’t pronounce it at first and everyone finds it easier to call them that 

Am I scared – maybe – I don’t know what I feel right now , I’m trying not to think about it to keep my chin up and head held high at the moment but either way it’s someone I have to deal with 

But there is one question ???? How do I tell my ex who I’m still friends with , do I wait till I know the score and blurt it out do I say it could be and let him worry or do I say nothing and when he says how are you – lie ??? 


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s