Cats Sunday morning

Cats Sunday morning

The weather has been more like March / April time this weekend so the furries have been making the most of it

Ben

Elli

As soon as she heard the kids next door she wanted in

Crocus all over Roo’s grave

She always loved flowers πŸ’

New York Thursday πŸ‡ΊπŸ‡Έ

New York Thursday πŸ‡ΊπŸ‡Έ

More of the same – well with a bit of a pyro 🧨 training thrown in and a proper lunch break which meant flying visit to Macy’s

Early finish so I knew what I wanted to do – over to M. O. M. I to see the Jim Henson exhibition (despite my first ever nose πŸ‘ƒ bleed which threw me )

Homeward bound tomorrow but out with industry friends tonight to see King Kong (the musical) thought whilst I was here I’d give it a go

And of course I’ve a carrier bag full of treats for the furry people back home 🐈🐱😺😼

New York (Tuesday/Wednesday ) πŸ‡ΊπŸ‡Έ πŸ—½πŸ¨

New York (Tuesday/Wednesday ) πŸ‡ΊπŸ‡Έ πŸ—½πŸ¨

So you know it’s a new year when I start getting kicked off for production meetings etc stateside πŸ‡ΊπŸ‡Έ

Literally got here late Tuesday night and it’s been all go ever since

Staying at our usual hotel over looking Times Square

Wednesday was meeting after meeting no lunch so I was living on sparking water and candy

Wednesday night knew I would have to get an early night so supper with an ex pat actor friend quick look at the Disney store and then crashed out watching trashy tv back at the hotel lol πŸ˜†

SKYDIVING !!!!

SKYDIVING !!!!

Am I crazy YES, Am I insane YES , Am I doing it for charity YES YES YES

On 6th August this idiot will be strapped to a member of the red devil parachute team as we plummet to the ground all in the name of charity

I have vowed to raise Β£500 for the North London branch of Cats Protection I’m 1/5 of the way there so if you have a pound,dollar,yen,euro to spare then please go to the following link thank you

http://www.justgiving.com/fundraising/goblinqueentakestheplunge

Chronic Illness / invisible illness

Chronic Illness / invisible illness

This is me

How would you say I look ?

Well ? Fine ? Healthy ? Ok ?

I’ve got polyradiculopathy – basically my immune system is causing my motor nerves to stop working

Now do you still think I look healthy ??

This is what I and others get a lot – because we’re not in a wheelchair / because we don’t look like we’re at deaths door then we’re ok

And do you know who makes the most hurtful comments ? Teenagers ? NO , people my age ? NO , it’s OAP’s and people so ignorant who think if it’s something they know nothing about you’re making it up

Let’s take the pensioners first , I have a card from TFL here it is

I wouldn’t wear the badge as it’s huge lol but times I have been told that I shouldn’t be sitting in the priority seats on buses and tubes by the pensioners or told to stop being so ignorant and move my arse – showing them that usually shuts them up do they apologise do they hell

Same when you try to explain the condition on the phone to someone who doesn’t understand I get the same thing you’re making it up

Polyradiculopathy there is no cure for no treatment for them to say hey 6 months time you’ll be ok

To see me I have a limp that’s all – to look inside me you would see damaged nerves everywhere – imagine cutting open an electric cable all those bits of copper and wire are like my nerves

Ever seen a stick of broccoli πŸ₯¦? Before it’s been picked ?? That’s what my spine is like they’re called haemangioamas , non cancerous but would you like to go through chemo for them to grow back again ?? No neither would I

So when you ask someone how are you and you know they’ve got an invisible or chronic illness really mean what you’re saying – how are you , is there anything I can do to help ? Do you want to talk ?

We’re not looking for pity but we’re not looking for your patronising glances either when we tell you there’s something wrong with us Would you tell a blind person you don’t look blind if they don’t have their guide dog or white stick with them ? No you wouldn’t

Just remember not all illnesses are visible to the naked eye but if you want to know more then just ask I won’t bite

When enough is enough

When enough is enough

Oh you don’t look like you have anything wrong with you

You don’t look like you have a disability

Well wake up sunshine get your blinkers off and learn that all disabilities are not visable

I suffer with something called polyradiculopathy …… what’s that sounds like something made up right …… and this is what I have been told

Let’s break it down into simple man’s terms , my immune system is killing off my motor nerves the nerves that tell my brain how to make me move , seen a stick of Brussel Sprouts how they grow , that’s how my spine is – these are called haemangiomas or gummy bears to my friends.

The best part … no cure , the only thing they can do is either chemo or cut the blood supply off to the gummy bears .

There are days when the pain is there and I can cope , and then there are days like Tuesday where I couldn’t take any more, walking nearly killed me it’s like dragging a dead body tied to your leg , by the time I got home , sat down on the sofa the tears started .

Not just started but full on blown sobbing , crying for the life I lost, crying for the fact I can’t do what I used to be able to do the fact that I am having to let friends down after making plans to see them weeks ago and as soon as the date is nearer I have to bail.

So if you’re one of those people don’t look at me like I’m pulling a fast one , don’t treat me like an idiot , if you know me just be my friend.

I don’t know how long it’ll be before the nerves pack up and I end up paralysed , could happen later this year could be 10 years down the road , they have said that the only way they will know my future is for me to have the same symptoms as I did in 2012 , when an asian registrar came to my home and didn’t have a clue , instead of saying I don’t know what is going on I will have to get a senior GP round to see, no she left it for 5 months before referring me , what she should have done is had me admitted to hospital for neurological tests there and then so they could have seen what was causing the problems

So if ever you see a registrar ask for a 2nd opinion , that may save a lot of heartbreak